#MyKidneyVoice

This toolkit includes everything you need to advocate for the kidney community on social media.

Join the #MyKidneyVoice conversation and help your friends, family, and followers understand the importance of addressing the challenges of kidney disease and promoting better kidney health through public policy.

A list of social media accounts for your senators and representatives can be found here. It includes Twitter and Instagram handles and a link to each legislators’ Facebook page. Please be sure to use #MyKidneyVoice with any messages you send to your lawmakers.

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Social Media Advocacy Toolkit

Hashtag: #MyKidneyVoice

Use the hashtag #MyKidneyVoice any time you post about your advocacy on social media to help us promote your outreach to public leaders.

Talking Points

Help us amplify these key points as you post about legislative and policy priorities in your social media activity.

Living Donor Protection Act:
This bill eliminates discrimination against living donors in the procurement of life, disability, and long-term care insurance. Insurance companies cannot drop a living donor, change their premiums, or refuse coverage based on their status as a living kidney donor.

The Improving Access to Home Dialysis Act:
This bill seeks to remove barriers to accessing home dialysis and ensure that patients who do choose home dialysis have the support they need to be successful.

Address Racial and Ethnic Disparities:
The National Kidney Foundation supports efforts to reduce the burden of kidney disease in diverse and underserved communities. Specifically, we encourage Congress to:
  • Improve Chronic Kidney Disease population health in underserved communities;
  • Increase public investment in kidney health equity
  • Close the race and ethnicity gap in Access Living Donor Kidney Transplant
  • Enhance understanding of barriers to transplant for racial and ethnic minorities
  • Ensure equitable access to home dialysis success
  • Extend Medigap to all ESRD beneficiaries

Twitter Tips

  • Follow the National Kidney Foundation (@NKF_Advocacy and @NKF) and retweet posts that speak to you and your kidney journey.
  • Whenever appropriate, tag your lawmakers in your tweets, (e.g., when you thank them for meeting with you, after you’ve emailed them about a key issue, etc.).
  • The text of your tweet must be under 280 characters. New: Twitter’s character limit now excludes space for a link and/or photo, so you can add those even after the character count of your tweet has reached 280.
  • Add photos and videos of your visits with lawmakers!
  • Identify your hometown and mention that you’re a constituent to identify yourself as a resident in their district or state.
  • Tweet at your legislator using the hashtag #MyKidneyVoice and mention one of the following statistics:
    • An estimated 37 million Americans have kidney disease.
    • 90% of Adults with Chronic Kidney Disease are unaware they have it.
    • Medicare spends $90,000/year per kidney patient.
    • More than 500,000 Americans are on dialysis.
    • Approximately 100,000 Americans are waiting for a kidney transplant.
    • Nearly 23,400 Americans received a kidney transplant in 2019.
  • Or use a state-specific state from the fact sheets on our web site.

Facebook Tips

  • Follow the National Kidney Foundation and consider sharing posts that speak to you and your kidney journey.
  • Post updates, photos, and videos of you and your advocacy activities on your personal Facebook page.
  • When sharing an advocacy-related post, please tag your lawmakers in the post by using the “@” symbol before typing their name (or the name of their Facebook page).
  • Use the hashtag #MyKidneyVoice whenever you post about your advocacy activities.

Sample Social Media Posts for Home Dialysis

Use the following gif, videos and images with the social media posts for Home Dialysis:

 

Facebook and Twitter Image: 

 

 

Twitter Post:

  • Home #dialysis provides patients with flexibility and a more personalized schedule. Unfortunately, only 12% of dialysis patients in the U.S. use this option. Help us increase awareness and access by asking Congress to pass H.R.5426 today: voices.kidney.org/home. #MyKidneyVoice [TWEET THIS]
  • Home #dialysis can lead to better outcomes but not all patients are offered an equal opportunity to use it. Join us in asking Congress to pass the Improving Access to Home Dialysis Act so all patients get a fair chance. Learn more at voices.kidney.org/home. #MyKidneyVoice [TWEET THIS]
  • Providing paid staff assistance will help more home #dialysis patients succeed. This bill covers staff assistance, improves education & training, and creates a needed quality of life metric for all dialysis patients. Take action at voices.kidney.org/home. #MyKidneyVoice [TWEET THIS]

 

Facebook Post:

  • Home dialysis provides patients with flexibility and a more personalized schedule. Unfortunately, only 12% of dialysis patients in the U.S. use this option. Help us increase awareness and access by asking Congress to pass H.R. 5426 today: voices.kidney.org/home #MyKidneyVoice
  • Home dialysis can lead to better outcomes but not all patients are offered an equal opportunity to use it. Join us in asking Congress to pass the Improving Access to Home Dialysis Act so all patients get a fair chance. Learn more at voices.kidney.org/home. #MyKidneyVoice
  • Providing paid staff assistance will help more home dialysis patients succeed. This bill covers staff assistance, improves education & training, and creates a needed quality of life metric for all dialysis patients. Take action at voices.kidney.org/home. #MyKidneyVoice

Sample Social Media Posts for Advocacy Resources

Use the following social media posts for Advocacy Resources:

 

Twitter Posts:

 

Facebook Posts:

  • Advocacy plays a key role in our mission. We’re dedicated to making sure you have the tools you need to help us make a difference in the life of every kidney patient. #MyKidneyVoice https://www.kidney.org/advocacy/resources
  • Our Public Policy Committee is made up of NKF care partners and kidney disease patients who come together to advance health policy benefiting the entire kidney community. #MyKidneyVoice https://www.kidney.org/advocacy/ppc
  • Learn more about our advocacy agenda and how we’re working to shape public policy on behalf of kidney disease patients nationwide. #MyKidneyVoice https://www.kidney.org/advocacy
  • Follow the latest updates about how we’re working to advance kidney community policy priorities across the country. #MyKidneyVoice https://www.kidney.org/advocacy-action
  • Join our growing network of advocates to make a difference in the life of every patient with kidney disease! We need volunteers like you to help shape public policy focused on kidney health, organ donation, and transplantation. #MyKidneyVoice https://www.kidney.org/advocacy/advocate
  • Our Kidney Advocacy Committee is a group of dedicated patients who advocate for public policy that would improve kidney health and quality of life for patients nationwide. Help us grow this movement by applying today! #MyKidneyVoice https://www.kidney.org/advocacy/advocate

Sample Social Media Posts for Voices for Kidney Health

Down the video and the following social media posts for Voices for Kidney Health:

 

Voices for Kidney Health Video – https://nkf.egnyte.com/dl/SwAWqKfBYY

 

Twitter Posts:

  • Your voice can save lives. Join the Voices for Kidney Health community to help advocate for policies that will help prevent kidney disease, and ensure quality care and a lifesaving transplant for everyone who needs it. #MyKidneyVoice voices.kidney.org [TWEET THIS]
  • Your voice can be the sound of change. Help us work w/elected officials to pass bills to expand access to home dialysis, spur investments in research & protect kidney donors from losing their insurance. Join Voices for Kidney Health today. #MyKidneyVoice voices.kidney.org [TWEET THIS]
  • Big victories are possible with your voice. Become a NKF advocate and join our Voices for Kidney Health Community today. #MyKidneyVoice voices.kidney.org [TWEET THIS]
  • We need to show lawmakers the importance of kidney disease policy and the positive impact it can have on patients and their families. Tell us your story! #MyKidneyVoice https://voices.kidney.org/share-your-kidney-disease-story/ [TWEET THIS]

 

Facebook Posts:

  • Change starts with you. The National Kidney Foundation is launching Voices for Kidney Health, a community of patient and care professional advocates working to advance policies that help those facing the challenges of kidney disease. Join us. #MyKidneyVoice voices.kidney.org
  • Your voice can be the sound of change. Help us work with elected officials to pass bills that will stop insurance companies from discriminating against living donors; expand access to home dialysis; and spur greater investment in awareness, healthcare equity, and research. Join Voice for Kidney Health today. #MyKidneyVoice voices.kidney.org
  • Big victories are possible with your help. Join the Voices for Kidney Health community to advocate for policies and initiatives that will help prevent and delay kidney disease, promote quality care for patients with kidney failure, and ensure that everyone who wants a lifesaving transplant can get one. Your voice can be the sound of change – join us. #MyKidneyVoice voices.kidney.org
  • We need to show lawmakers the importance of kidney disease policy and the positive impact it can have on patients and their families. Tell us your story! #MyKidneyVoice https://voices.kidney.org/share-your-kidney-disease-story/

 

Download the images below to use with the sample posts:

 

Image below can be used as a Facebook Header:

Image below can be used as a Twitter Header:

Sample Social Media Posts for Living Donation

Use the following social media posts for Living Donation:

 

Twitter Post:

 

Facebook Post:

Sample Social Media Posts for Increased Funding

Download the Funding Video and use with the social media posts below

 

Funding Video – https://nkf.egnyte.com/dl/wP6ZSVdXuA

 

Twitter Posts:

  • Now is the time to increase our investment in kidney health. Learn more about how Congress can help at kidney.org/advocacy #MyKidneyVoice [TWEET THIS]
  • Chronic kidney disease affects more than 37 million adults in the U.S. and 90% are unaware that they have it. It’s time for Congress to increase investment in the awareness, early detection, and treatment of CKD today. Learn more at kidney.org/advocacy. #MyKidneyVoice [TWEET THIS]
  • Increasing investment in awareness, early detection, and treatment of CKD will make a difference in slowing the progression, reducing costs, and improving the lives of kidney patients. Learn more at kidney.org/advocacy. #MyKidneyVoice [TWEET THIS]

 

Facebook Posts:

  • Now is the time to increase our investment in kidney health. Learn more about how Congress can help at kidney.org/advocacy #MyKidneyVoice
  • Chronic kidney disease affects more than 37 million adults in the U.S. and 90% are unaware that they have it. It’s time for Congress to increase investment in the awareness, early detection, and treatment of CKD today. Learn more at kidney.org/advocacy. #MyKidneyVoice
  • Increasing investment in awareness, early detection, and treatment of CKD will make a difference in slowing the progression, reducing costs, and improving the lives of kidney patients. Learn more at kidney.org/advocacy. #MyKidneyVoice