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Photo credit: Robert Voets/CBS
Have you ever heard of Prune Belly or Eagle-Barrett syndrome? Joshua Wilder was born with this rare genetic disease that affects his abdominal muscles, urinary tract system, and kidneys. Often a life-threatening condition, doctors weren't sure that Josh could survive. Despite the grim prognosis, Josh beat the odds and has grown into a thriving, kind adult who doesn't let anything stop him.
This...
Continuing education series for professionals.
Transitioning to dialysis is often a complicated and confusing development for our patients. It is the role of healthcare providers to understand these struggles and prepare them to succeed in their new life situations.
Kidney disease patients transitioning to dialysis Whether a patient knows about their kidney disease diagnosis or crashes into kidney failure, going...(April 12, 2023, New York, NY) — The National Kidney Foundation (NKF) will feature a late-breaking plenary session by Travere Therapeutics on the interim analysis of efficacy and safety data from the ongoing Phase 3 PROTECT Study evaluating FILSPARI™ (sparsentan) in adults with IgA nephropathy (IgAN). “Rapid and Sustained Proteinuria Reduction with Sparsentan in Immunoglobulin A Nephropathy (IgAN): PROTECT Study Interim Results...
For Members of Congress, social media has emerged as an essential tool for engaging with the public and the constituents that they represent. For Voices for Kidney Health advocates, it can likewise serve as a great way to ensure the people representing you in Congress are aware of the importance of supporting and helping to advance our kidney agenda.
That's why we just launched...
In 2007, Ryan Shay, a professional athlete, collapsed during the US Olympic Marathon trials and later passed away from heart failure related to a preexisting condition. His passing sent shockwaves throughout long-distance running communities worldwide as many didn't think this could happen to such an active, fit person.
One of those runners was Coby Jacobus who saw this tragedy as a wake-up call to stop ignoring symptoms he has...
By Kevin Longino, CEO of National Kidney Foundation and kidney transplant patient
COVID-19 doesn’t just attack a patient’s lungs, it damages the kidneys. But a new Harris Poll released by the National Kidney Foundation shows surprisingly low levels of awareness on both the risk of developing an...
Finding a living donor can sound scary and overwhelming. Where do you start and what are the best ways to share your story? Here’s advice from two transplant recipients who once stood in your shoes and a transplant social worker: Gisela Delgado, an advocate for living donation; Morgan Reid, Transplant Policy and Strategy with the National Kidney Foundation; and Dori Mench, a post-transplant social worker.
Where to start...