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Open enrollment for Medicare Advantage is upon us and it’s important that kidney patients get all the information as they make decisions that will affect their care. Below are some important FAQs and other factors for you to think about as you consider your options.
What is the difference between Medicare Advantage and regular Medicare? Traditional MedicareTraditional Medicare, (sometimes called fee-for-service), is the federal...
On Wednesday, September 16th, more than 150 advocates from 43 states representing kidney patients nationwide and on behalf of the National Kidney Foundation (NKF), PKD Foundation, Alport Syndrome Foundation, and IGA Nephropathy Foundation met virtually with more than 160 legislators and health policy staff “on” Capitol Hill.
Thank you to all our advocates who took two days out of their busy schedules to advocate for the kidney...
Your diet plays a big role after a kidney transplant. Do you know which foods to avoid or how your transplant medications affect what you can eat? Kidney transplant dietitian, Karen Greathouse, is here to break it down.
Will my diet change after a kidney transplant?Your diet expands significantly after a kidney transplant–especially if you've been following a restrictive diet for end-stage kidney disease. However, what you...
Roman McCormick was born with branchiootorenal/branchiootic syndrome, also known as BOR/BO syndrome. BOR/BO syndrome is a rare genetic condition that can affect the growth and development of the neck (branchio-), ears (oto-), and kidneys (renal)—although people with the branchiootic (BO) expression of the syndrome don’t have developmental differences in their kidneys. The way the condition presents itself varies widely from person to person,...
Recent National Kidney Foundation policy statements and comment letters have continued our organizational focus on the drive toward improved kidney health equity, transparency in kidney care, and adjusting regulations to remove barriers to living organ donation wherever possible. Here's what we've done.
Published Kidney Equity Policy PaperNKF’s first-ever health equity paper is a key component of our recently launched...
By Curtis Warfield, Kidney transplant recipient and Kidney Advocacy Committee advocate
On Wednesday and Thursday Aug 12 and 13, 2020, I had to pleasure to once again speak to my members of the US Congress and their staff about kidney health policy priorities. NKF partnered with KidneyCan on their District Days. KidneyCAN is a leading kidney cancer awareness group for the kidney cancer patient community.
I admit that while I...
The second year of the 117th Congress will be book-ended by unfinished business from 2021 and midterm elections this fall. In between, NKF and our Voices for Kidney Health advocate community will be working hard to ensure pressing patient needs are addressed by federal lawmakers.
In the early part of 2022, Congress will be finishing up the previous year’s appropriations process and beginning next year’s appropriations process. Last...
October 26, 2020, New York, NY —The National Kidney Foundation (NKF) is pleased to announce that Dr. Paul M. Palevsky, a nephrologist and Professor of Medicine, University of Pittsburgh School of Medicine and Chief of Kidney Medicine at the VA Pittsburgh Healthcare System, has begun his two-year term as president of NKF’s Board of Directors.
He...
When Monica was 27 years old, her health rapidly declined due to kidney failure. She could barely eat or drink without extreme nausea and crashed into emergency dialysis. Since those early days, four years ago, dialysis has become her constant companion, but she considers herself lucky to be able to dialyze at home. Home dialysis can be lifechanging. While at home, patients can decide when, how often, and for how long they dialyze and have...