E-Kidney Newsletter March 2010

E-Kidney Newsletter May 2010

 

Spouses of Dialysis Patients Have Reduced Kidney Function

Married couples share a bed, a life, children, but chronic illness? A new study, reported in the May issue of American Journal of Kidney Diseases, suggests that a shared home environment and health habits can contribute to the development of chronic kidney disease (CKD) in the spouses of dialysis patients.

 

Double DonationTop 7 Fitness Exercise Tips for Kidney Patients

Regular exercise improves muscle function, helps control blood pressure, lowers cholesterol and increases quality of sleep.

Despite the multiple benefits, many chronic kidney disease patients do not exercise enough due to concerns regarding what type of exercise they can do, how often they should exercise and how to create a fitness schedule. This month, the National Kidney Foundation answers 7 common fitness questions from CKD patients.

 

 

Mother's Day Brings Family Together to Celebrate Special Gift

For the last three years, the Grossman family has skipped the mad dash for perfume, jewelry and silk scarves in honor of Mother's Day. Instead, the 30-member clan files into a local, Long Island, NY, restaurant for brunch on Mother's Day morning to celebrate the ultimate gift. That is the gift of life daughter Casey gave her mom, Nadine, when she donated her kidney.

 

 

Spiff Up Dad with a "Love Your Kidneys" Tie—at 25% Off

Does your Dad always seem to wear his brightest and loudest ties to your most important milestone events? He'll embarrass you no longer when you buy him the National Kidney Foundation's new "Love Your Kidneys" necktie—perfect for Father's Day. This 100% silk fashion accessory features the "Love Your Kidneys" slogan in 22 different languages, with the English version front and center. Save 25% on the "Love Your Kidneys" tie, a matching woman's scarf for Mom and every item in the NKF store when you use the eKidneys510 code at checkout. Click here to order today.

 

 


NKF Clinical Meetings Inspire Fellow to Pursue Nephrology

Dr. Axel Pflueger had already decided to do his fellowship in nephrology, but his experience at NKF's Clinical Meetings reaffirmed that he had made the right choice.

 

 

Marjorie and Richard

Boyfriend Runs to Promote "Healthy Kidneys"

Richard Castillo couldn't give his girlfriend, Marjorie Miller,a kidney because of incompatible blood and tissue type. But that didn't stop him from lending support to her or the cause. On May 15, Castillo will hit the ground running in New York City's Central Park as he joins more than 7,500 runners from all over the world in the sixth annual UAE Healthy Kidney 10K to raise funds and awareness for NKF's kidney disease detection and organ donation programs.

 

 

A Perfect Finale for Your Mother's Day Brunch

Give Mom a vacation from the hot stove on Mother's Day with this kidney-friendly strawberry grand marnier straight from the Kidney Kitchen.

 

 

NKF's 2009 Annual Report is online now.

Nurse practitioner wins NKF's nationwide art contest click here for more.

Spring is in the air... sign up for a local Kidney Walk today.

 


 

 

Spouses of Dialysis Patients Have Reduced Kidney Function

Married couples share a bed, a life, children, but chronic illness? A new study, reported in the May issue of American Journal of Kidney Diseases, suggests that a shared home environment and health habits can contribute to the development of chronic kidney disease (CKD) in the spouses of dialysis patients.


"We were surprised to find that the risk of developing chronic kidney disease for spouses of hemodialysis patients is just about as high as it is for blood relatives of these patients," said study author Dr. Hung-Chun Chen of the Division of Nephrology at Kaohsiung Medical University Hospital in Taiwan.

To see how environmental factors might contribute to the development of CKD, researchers examined prevalence of chronic kidney disease in 95 spouses and 196 first- and second-degree relatives of 178 hemodialysis patients, who had been undergoing dialysis for between three months and 21 years.

The prevalence of CKD was found to be significantly higher in spouses and relatives of hemodialysis patients, than in a matched control group who were not related or married to patients. Both types of relatives were found to have a noticeably lower estimated glomerular filtration rate (eGFR), a measure of kidney function, and a high rate of albuminuria, or protein in the urine, an early sign of kidney disease.

The spouses had higher rates of habitual smoking, use of herbal medicines and analgesics and high blood pressure than their control group. Additionally, diabetes, which can be caused by obesity and poor health habits, was found to be a significant risk factor for CKD in spouses of dialysis patients.

"In light of these findings, it is critically important that spouses of dialysis patients receive careful screening for chronic kidney disease, in addition to first degree relatives," said Dr. Kerry Willis, Senior Vice President for Scientific Activities, National Kidney Foundation. "Education about the role of environmental factors and health habits in increasing the risk of developing CKD is essential, as well."

The National Kidney Foundation offers free screenings to those at risk of chronic kidney disease—anyone with high blood pressure, diabetes or a family history of kidney failure, through its Kidney Early Evaluation Program.

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Top 7 Fitness Exercise Tips for Kidney Patients

Regular exercise improves muscle function, helps control blood pressure, lowers cholesterol and increases quality of sleep.

Despite the multiple benefits, many chronic kidney disease patients do not exercise enough due to concerns regarding what type of exercise they can do, how often they should exercise and how to create a fitness schedule. This month, the National Kidney Foundation answers 7 common fitness questions from CKD patients.

  1. What types of exercise can I do?
    Choose continuous activity such as walking, swimming, bicycling (indoors or out), skiing, aerobic dancing or any other activities in which you need to move large muscle groups continuously.

    Low-level strengthening exercises may also be beneficial as part of your program. Design your program to use low weights and high repetitions, and avoid heavy lifting.

    One simple way to exercise and help many others with CKD is to join a local Kidney Walk

  2. .
  3. How often and for how long should I exercise for?
    Exercise at least three days a week. These should be non-consecutive days, for example, Monday, Wednesday and Friday. Three days a week is the minimum requirement to achieve the benefits of your exercise. Work toward 30-minute sessions. Remember to build up gradually to this level.

  4. Can I take part in vigorous physical activity?
    Yes. In the past, it was thought that people with kidney disease would not be able to join in vigorous activity. We know now that patients who decide to follow an exercise program are stronger and have more energy.

  5. How hard should I work while exercising?
    This is the most difficult to talk about without knowing your own exercise capacity. Usually, the following ideas are helpful:

    • Your breathing should not be so hard that you cannot talk with someone exercising with you. Try to get an exercise partner such as a family member or a friend.
    • You should feel completely normal within one hour after exercising. If not, slow down next time.
    • You should not feel so much muscle soreness that it keeps you from exercising the next session.

    The intensity should be a "comfortable push" level. Start out slowly each session to warm up, then pick up your pace, then slow down again when you are about to finish. The most important thing is to start slowly and progress gradually, allowing your body to adapt to the increased levels of activity.

  6. When should I exercise?
    Try to schedule your exercise into your normal day. Here are some ideas about when to exercise:
    • Wait one hour after a large meal
    • Avoid the very hot times of the day
    • Morning or evening seems to be the best time for exercising
    • Do not exercise less than an hour before bedtime

  7. When should I stop exercising?
    You should stop exercising if you feel any of the following:
    • Very tired
    • Shortness of breath
    • Chest pain
    • Irregular or rapid heart beats
    • Sick to your stomach
    • Leg cramps
    • Dizzy or light-headed

  8. Are there any times when I should not exercise?
    Yes. You should not exercise without talking with your doctor if any of the following occurs:
    • You have a fever
    • You have changed your dialysis schedule
    • You have changed your medicine schedule
    • Your physical condition has changed
    • You have eaten too much
    • The weather is very hot and humid
    • You have joint or bone problems that become worse with exercise

    If you stop exercising for any of these reasons, speak to your doctor before beginning again.

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Mother's Day Brings Family Together to Celebrate Special Gift

For the last three years, the Grossman family has skipped the mad dash for perfume, jewelry and silk scarves in honor of Mother's Day. Instead, the 30-member clan files into a local, Long Island, NY, restaurant for brunch on Mother's Day morning to celebrate the ultimate gift. That is the gift of life daughter Casey gave her mom, Nadine, when she donated her kidney.

Nadine, of Roslyn Heights, Long Island, had lived with hereditary kidney disease her whole life and was able to keep it under control until 2006. That's when her kidneys began to fail and doctors told her she could either go on dialysis or place herself on the long waiting list for a kidney transplant.

No stranger to these difficult choices, Nadine knew about the treatment options and transplant waiting list from her dad who passed away from the same disease, her brother who received a kidney transplant 15 years ago and her daughter, Casey's sister, who also has the disease. So she got moving right away when she heard the news. Nadine traveled to seven different states to sign up on their transplant waiting lists, but found that the wait was very long in each.

One morning in the fall of 2007, Casey stopped by Nadine's desk at the office where they were both working at the time and asked her, "Mom, what are you doing on January 22?"

Nadine replied that she had no idea what she was doing the next day, let alone in a few months. "Well save the date, then, Mom, because you're getting a kidney--from me!" Casey replied. A few weeks later, Casey followed through on her promise and gave her mom the gift of life.

To learn more about living donation click here

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NKF Clinical Meetings Inspire Fellow to Pursue Nephrology

Dr. Axel Pflueger had already decided to do his fellowship in nephrology, but his experience at NKF's Clinical Meetings reaffirmed that he had made the right choice.

When he presented a poster highlighting his basic research in the area of diabetic kidney disease and fielded questions from senior investigators, he began to understand the huge burden of the disease from a clinical aspect and how he could apply his findings to practice.

NKF's 2010 Clinical Meetings
drew a record 2,500 participants from around the world and according to Pflueger, the meeting helps determine the future of the field.

"Scientists, clinicians and patients all live in their own world and at the NKF Clinical Meetings, those worlds connect and converge. Researchers can begin to think about how their work can impact clinical therapy. Senior faculty at the meeting support and foster the career interests of the residents, trainees and younger doctors. The feeling is that this is a bit like a family trying to create the next generation."

The NKF Clinical Meetings offer stimulation through interaction with peers, senior investigators and clinicians who help each other learn about all the various aspects of the field. The Meetings help advance the understanding of kidney disease and its successful therapy and prevention. "You get a new perspective on your own work, in addition to encouragement and education. I know these meetings will help plan therapy that we'll be using 10 years from now," continues Pflueger.

Click here to view all of the poster abstracts from NKF's 2010 Clinical Meetings held last month in Orlando, FL.

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Boyfriend Runs to Promote "Healthy Kidneys"

Marjorie and Richard

Richard Castillo couldn't give his girlfriend, Marjorie Miller,a kidney because of incompatible blood and tissue type. But that didn't stop him from lending support to her or the cause. On May 15, Castillo will hit the ground running in New York City's Central Park as he joins more than 7,500 runners from all over the world in the sixth annual UAE Healthy Kidney 10K to raise funds and awareness for NKF's kidney disease detection and organ donation programs.

As recently as November 2009, Marjorie Miller had never given her kidney function a second thought. But when the 36-year-old mother of two began experiencing extreme fatigue, she realized something was not right. After administering multiple tests, Marjorie's doctor delivered the shocking news. She had stage four chronic kidney disease.

"When I exited my doctor's office, I got into my car and cried," said Marjorie. "But instead of letting myself get depressed, I drove home and immediately started reading every article on the Internet that I could find on chronic kidney disease. After hours of searching and reading, I knew I could survive this and live a long and healthy life."

First, Marjorie began rallying a team of people to help her, including doctors at Columbia-Presbyterian Hospital in New York. There, Marjorie learned that pre-emptive transplants, those completed before the onset of dialysis treatment, carried the greatest success rates.

And so, Marjorie began the search for a living donor. Her mother, brother and boyfriend, Richard, were all tested and her brother, Max, proved to be a match. Max hopes to donate one of his kidneys to his sister this summer.

Since Marjorie's boyfriend, Richard Castillo, found that he was not a compatible kidney donor, he decided to join the UAE Healthy Kidney 10K field to raise funds for the National Kidney Foundation.

The UAE Healthy Kidney 10K was initiated in 2005 as an awareness and tribute event to Sheikh Zayed of the United Arab Emirates (UAE). The former UAE president Sheikh Zayed Bin Sultan Al-Nahyan benefited from U.S. expertise, knowledge and research when he received a kidney transplant in 2000. The Embassy of the UAE sponsors this race to benefit the National Kidney Foundation in appreciation of American doctors and U.S. excellence in kidney transplantation. Richard and Marjorie will be easy to spot at Central Park on May 15 as both will be wearing their signature "Got Kidneys?" t-shirt.

To register to run the UAE Healthy Kidney 10K click here

.

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A Perfect Finale for Your Mother's Day Brunch


Give Mom a vacation from the hot stove on Mother's Day with this kidney-friendly strawberry grand marnier straight from the Kidney Kitchen.

 

 


Strawberry Grand Marnier

9 servings

Cookie
1/4 cup cake flour
2 tablespoons sugar
3 egg whites
2 teaspoons of Grand Marnier

Sift cake flour and sugar together, twice. Beat egg whites until stiff, add Grand Marnier and fold dry ingredients into the egg mixture. Pipe out onto parchment paper, 3 X 4 inch rectangles on a cookie sheet. Bake in 375 F oven for 10 to 12 minutes. Let cool, freeze and they are easier to remove from the parchment paper.

Whip Cream
1 cup whipping cream
2 tablespoons Grand Marnier
2 tablespoons powdered sugar

Whip cream until it becomes stiff peaks; add powdered sugar and Grand Marnier. Dollop the whip cream on a plate, place 3 strawberries next to whip cream and stand the cookie in the whip cream.

Analysis
Calories 138, total fat 8.4 g, saturated fat 5.2 g, monounsaturated fat 2.4 g, polyunsaturated fat 0.3 g, cholesterol 29.6 mg, calcium 25.7 mg, sodium 27.6 mg, phosphorus 29 mg, potassium 100 mg, total carbohydrates 12 g, dietary fiber 0.8 g, sugar 7.5 g, protein 2.2 g

This recipe was submitted by CKD patient Chef Duane Sunwold.

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NKF's 2009 Annual Report is online now.

Nurse practitioner wins NKF's nationwide art contest click here for more.

Spring is in the air... sign up for a local Kidney Walk today.